# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Trisomy 13

Patau Syndrome
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Support Type
Support Services
Displaying 1-10 of 29 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides ...
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
The Association for Molecular Pathology (AMP) is a professional association founded in 1995 to provide structure and leadership to the then-emerging field of molecular diagnostics. Through its Council and Committees, AMP pursues topics of importance to those at the forefront ...
Area Served: Minnesota
Established: 2012
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case.
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 24 Jun 2019
The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to reach out, provide hope and give help to people with CdLS and those who care for them.
Area Served: International
Established: 2008
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Jun 2019
VISION STATEMENT A future without Dupuytren disease. MISSION STATEMENT Our mission is to do whatever is needed to develop and test preventive treatments for Dupuytren disease and related conditions. Our core effort focuses on answering the greatest need in Dupuytren treatment: developing ...
Area Served: International
Established: 2006
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
OUR MISSION The mission of Hope For Trisomy is to 1) FUND RESEARCH for rare trisomies and related chromosome disorders; 2) PROMOTE EDUCATION by developing programs that educate parents of children with Trisomy about options available to their child and teach them how ...
Area Served: United States
Established: 1980
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support can be provided during ...
Established: 1996
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
S.O.F.T. Australia is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders.
Established: 2012
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
We are a 501 (c) (3) non-profit organization dedicated to the needs of families affected by the genetic disorder Trisomy 18. It is our mission to provide emotional and financial support to these special families. We will provide information to ...
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.