# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Palmoplantar keratoderma, epidermolytic

Hyperkeratosis palmoplantar localized epidermolytic
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Support Type
Support Services
Displaying 1-10 of 26 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides ...
Area Served: Minnesota
Established: 2012
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case.
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 21 Jun 2019
The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to reach out, provide hope and give help to people with CdLS and those who care for them.
Area Served: International
Established: 2008
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Jun 2019
VISION STATEMENT A future without Dupuytren disease. MISSION STATEMENT Our mission is to do whatever is needed to develop and test preventive treatments for Dupuytren disease and related conditions. Our core effort focuses on answering the greatest need in Dupuytren treatment: developing ...
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Foundation's mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.
Area Served: United Kingdom
Established: 2016
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 6 Jun 2019
Any Baby Can serves families that have a child under the age of 13 with a chronic illness, developmental delay or health risk, through case management and other support services.
Area Served: United States
Established: 2003
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring ...