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Hennekam syndrome

Hennekam lymphangiectasia-lymphedema syndrome
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Type of Disease: Rare Condition or Disease Genetic, autosomal recessive Congenital onset Intellectual disability (no physical disability)

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

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Disease Resources

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Displaying 11-14 of 14 results.
Transition from School to Adult Life
Added On: Nov 8, 2012
Category: General
Language(s): English, Spanish
Provides information, training, and technical assistance for youth, their families, and professionals in order to support informed and effective transition from school to adult life for youth with disabilities
The New Jersey Action Blueprint for TRANSITION to Adult Health Care
Added On: Nov 8, 2012
Category: General
Language(s): English
Defining transition age from 16-30 years of age, this project shifts the predominant paradigm in health care transition: from pediatrics being ready to “send” patients, to preparing the adult health care system to “receive” emerging adult patients.
My Health Passport
Added On: Nov 8, 2012
Category: Insurance
Language(s): English, Spanish
Teens with special needs can share important information with medical care providers when they visit a doctor’s office or clinic, or stay in a hospital. Two-sided PDF in English and Spanish.
The Evaluation of Children with Deaf-Blindness: A Parent Mini-Guide
Added On: Nov 8, 2012
Category: General
Resource materials for families of children with deaf-blindness based onto support the development of meaningful, appropriate programming for students with deaf-blindness.