# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

22q11.2 Deletion Syndrome

DiGeorge sequenceShprintzen syndromeDiGeorge SyndromeVelocardiofacial Syndrome (VCFS)Conotruncal Anomaly Face Syndrome (CTAF)
Get Update

Find Support

Support Type
Support Services
Displaying 1-10 of 26 results.
Area Served: International
Established: 1984
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 2 Jul 2019
Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.
Area Served: National
Established: 2007
501(c)3 Nonprofit: No
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
We provide mutual help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/V.C.F.S. Through education, research, outreach and advocacy we seek to raise awareness of this little known condition.
Area Served: International
Established: 1998
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
Our mission is to provide support and information to families or individuals affected by disorders of chromosome 22.
Area Served: International
Established: 2003
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 10 Jul 2019
Our mission is to improve the quality of life for individuals affected by chromosome 22q11.2 differences through family and professional partnerships.
Area Served: United States
Established: 1985
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 30 Jul 2019
Our organization was formed in 1985 with the main mission of providing support, information, resources, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live ...
Area Served: National
Established: 1997
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Oct 2019
Our mission is to support those affected by 22q11.2 Deletion Syndrome, raise awareness, and promote education programs.
Area Served: Texas
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
The purpose of VCFS Texas, Inc. (22q Texas) is to provide support and resources to individuals with 22q11.2 deletion syndrome a.k.a. Velocardiofacial syndrome (VCFS) or DiGeorge syndrome (collectively "22q"), their families, professionals, and the community in Texas. We achieve ...
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.